Tuesday, September 22, 2009

Mama's little roommate / 小病友

Mama's little roommate is only 9 years old. She was diagnosed with brain cancer in Jun. Her health deteriorated very fast. She shifted to the same ward as my mama only few days ago. She was able to speak in broken sentences at that time, but now she totally cannot talk. Nor can she tolerate bright light (photophobia). They have to keep the room fully dark for her. When the nurses are attending to her infusion, they need to switch on the light. Immediately she points to the light, indicating that she feels very uncomfortable. There have been times when the medical team were quite insensitive regarding the little girl's need, open discussion of confidential issues occuring at the girl's bedside. On at least one occasion the little girl became visibly distressed by this. Doctors were indicating in front of her to the parents to get ready, and suggesting that they consider giving birth to another healthy baby. They also indicated that no more could be done to save the little girl and it maybe better to bring her home. Upon hearing this, the father said repeatedly:"I told you we should never have come here" They asked the girl:"Shall we go home? You'd prfer to go home?" No reply from her. Mama said the doctors should not talk like that right in front of the kid. Her parents said:"It dosen't matter anymore. She can't understand now." But mama noticed she bit her mother's finger while the doctor was talking. Poor little girl. I'll pray for you and let the pain go away from you forever.

妈妈的小病友才九岁,她得了脑癌,而且恶化速度极快,六月份才发现的,现在已经完全不能讲话了,前两天来的时候,还能断断续续的讲一点,而且她很怕光,整个房间即使是白天也是一片漆黑,每次护士给她换药时不得不开灯,她便指指灯,表示希望关掉。医生表示他们已经无能为力了,还是回去再生一个健康的宝宝吧,并暗示他们不如回家去算了。她的父母便问她:“要不要回家?”却一直没有得到答案,妈妈说医生不该当着她的面说那些话,她的父母说这已经无关紧要了,因为她现在已经无法听懂了。可妈妈看到当医生说那些话的时候,她便抓起她妈妈的手,咬咬她的手指,可怜的孩子,远方的阿姨会为你祈祷,愿病痛永远远离你。